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expand/collapse navigation preconception pregnancy toolkit labour & birth care of baby & you professional page preconception pregnancy toolkit labour & birth care of baby & you professional page women with epilepsy women with epilepsy maternity epilepsy shared-care toolkit click link and print 4 page double sided document. reference: morley k (2018) maternity epilepsy shared care toolkit. available from: www.womenwithepilepsy.co.uk pregnant women with epilepsy-a maternity[...] adobe acrobat document [1.2 mb] designed for use before, during and following pregnany to help with decision making, choice, risk reduction strategies, safety measures and empowerment to become an equal partner in your epilepsy maternity healthcare. this resource has been developed by an epilepsy specialist nurse/midwife from the experience of supporting women with epilepsy & healthcare professionals over the last 18 years. it showcases the latest evidence based research & guidelines & links with epilepsy & pregnancy support groups. it is regularly updated to reflect opinions of women with epilepsy & health professionals. feedback gratefully received to enable continued development. new: facebook group exclusively for women with epilepsy click: women with epilepsy to join twitter @epilepsymidwife are you taking sodium valproate and age under 50? 18th may 2018: latest recommendations from gov.uk valproate use for women & girls updated guidance with new toolkit including patient booklet and card about valproate risks. important all women receive specialist review of their treatment and for a pregnancy prevention plan to be in place for any girl or woman continuing this drug in the child-bearing years. gov.uk alert: women taking sodium valproate or valproic acid. the brand names are epilim, epilim chrono, epilim chronosphere, episenta, epival, depakote, convulex, kentlim, syonell and valpal. c lick new valproate patient booklet there is specific information for girls and young women taking sodium valproate, click: medicines for children . please obtain accurate information and advice from your gp, epilepsy specialist doctor or nurse before making any changes to your epilepsy medicines. this is so important as untreated epilepsy can lead to increased risk of serious harm from uncontrolled seizures. information on long acting reversible contraception and why women with epilepsy are advised to plan pregnancy, on this page. preconception advice to prepare for pregnancy & beyond support it is advisable that you receive support during the child-bearing years. it is important not to stop anti-epileptic drugs without seeking accurate advice from a doctor or epilepsy specialist due to risks of untreated epilepsy. if your diagnosis has not been reassessed in adult years, please discuss this with your gp before considering pregnancy. it is important that you have the opportunity of having a medication review before pregnancy. however the type of epilepsy can limit choice of treatment. some epilepsies, particularly generalised (genetic) may only respond to valproate. all women should receive accurate information about the possible effects of their antiepileptic drugs on a developing baby before they become pregnant. decision making many women with epilepsy are understandably anxious about pregnancy. to help with your decision making, you should be provided with accurate evidence based advice about fertility, contraception, pregnancy, breast feeding and safe parenting. feel reassured that the majority of women with epilepsy have normal pregnancies and birth healthy babies. frequently asked questions what is epilepsy? epilepsy is a serious neurological disease in which unprovoked, unpredictable seizures occur as a result of sudden bursts of excessive electrical activity in the brain. the diagnosis should either be made by a specialist paediatrician in childhood or a medical practitioner also with training and expertise in epilepsy, in adulthood, following at least two unprovoked (or reflex) seizures occurring more than 24 hours apart; or following one unprovoked seizure and a probability of further seizures similar to the general risk of recurrence (at least 60%) after two unprovoked seizures occurring over the next two years; or a diagnosis of an epilepsy syndrome [1]. epilepsy is usually diagnosed before age 20 and over age 65; but can occur at any time. the symptoms are individual to the person they are affecting and dependant on where in the brain they start, and where the abnormal electrical activity spreads within the brain. if a seizure starts in one part of the brain, it is called focal and if it involves most of the brain at the outset of the seizure, it is called generalised. sometimes people can have a combination of seizure types or their epilepsy cannot be classified. further information about what epilepsy is, how it is diagnosed and treated and information to help you take control of your condition, can be obtained from these excellent support groups: epilepsy action , epilepsy society , epilepsy research , sudep action , epilepsy scotland learn more about epilepsy epilepsy action epilepsy and you are all seizures due to epilepsy? no, seizures can be caused by a number of conditions including: syncope (fainting) due to a drop in blood pressure, lack of oxygen (anoxia) or a cardiac condition such as long qt wave. syncope and non epileptic attack disorder characterised by disassociative seizures (also called non-epileptic seizures) are the leading causes of epilepsy misdiagnosis. if you have been diagnosed with a psychological cause for your seizures, do access excellent information and support from non-epileptic attacks info: nead or neurosymptoms.org . please note that some people with known epilepsy can also experience non-epileptic seizures. other causes of misdiagnosis include migraine, sleep disorders and paroxysmal movement disorders [2] metabolic disorders such as diabetes related to very low or high blood sugar; low sodium (salt); hypercalcaemia (high blood calcium levels) and thyroid dysfunction can provoke seizures. many prescribed and unprescribed drugs, alcohol, some homeopathic drugs and recreational drugs can also lead to seizures. febrile convulsions (seizures usually related to raised temperature in the very young), stroke, head injury/trauma, meningitis, encephalitis, eclampsia, (a rare but serious cause of seizures in pregnancy), brain tumour, cerebral malaria, electric shock [3] and toxic shock syndrome are examples of conditions that can present with convulsive or non-convulsive seizures. this does not necessarily mean the person will go onto develop epilepsy however; having a history of any of these causal conditions can significantly increase the risk of developing epilepsy. do many women with epilepsy have babies? yes; about 2,500 births occur annually to women with epilepsy in the uk. should i be referred for preconception counselling? the majority of women treated with antiepileptic drugs (aeds) have good seizure control. however, it is important the gp refers you to a specialist if your epilepsy diagnosis and treatment has not been reassessed recently by an expert medical practitioner in epilepsy; if you are taking sodium valproate; if you have uncontrolled seizures despite taking medication; if you are taking more than one aed; if you have nocturnal seizures; if you have a history of prolonged seizures or if you have been more than two years seizure free whilst taking aeds. if you do not meet any of these criteria, you can still ask for an expert opinion. a reassessment will provide advice to enable you to make a shared informed decision about your future treatment and management in preparation for pregnancy and parenting. why should i plan my pregnancy? t he majority of women have a healthy baby following a normal pregnancy and labour but it is important to reduce the risk of harm through careful pregnancy p

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epilepsyresearch.org.uk
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epilepsyscotland.org.uk
learn.epilepsy.org.uk
medicinesforchildren.org.uk
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bbc.co.uk
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Whois Information

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Domain name:
womenwithepilepsy.co.uk

Registrant:
Kim Morley

Registrant type:
UK Individual

Registrant's address:
22 Briarswood Rise
Dibden Purlieu,Southampton
SO45 5SW
United Kingdom

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 03-Jul-2016

Registrar:
1 & 1 Internet SE [Tag = 1AND1]
URL: https://www.1and1.co.uk

Relevant dates:
Registered on: 28-Apr-2005
Expiry date: 28-Apr-2019
Last updated: 27-Apr-2017

Registration status:
Registered until expiry date.

Name servers:
ns33.1and1.co.uk 217.160.80.150 2001:08d8:00fe:0053:0000:d9a0:5096:0100
ns34.1and1.co.uk 217.160.81.150 2001:08d8:00fe:0053:0000:d9a0:5196:0100

WHOIS lookup made at 08:06:46 07-Nov-2017

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SERVERS

  SERVER co.uk.whois-servers.net

  ARGS womenwithepilepsy.co.uk

  PORT 43

  TYPE domain

OWNER

  ORGANIZATION Kim Morley

TYPE
UK Individual

ADDRESS
22 Briarswood Rise
Dibden Purlieu,Southampton
SO45 5SW
United Kingdom
Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 03-Jul-2016

DOMAIN

  SPONSOR 1 & 1 Internet SE [Tag = 1AND1]

  CREATED 2005-04-28

  CHANGED 2017-04-27

STATUS
Registered until expiry date.

NSERVER

  NS33.1AND1.CO.UK 217.160.80.150

  NS34.1AND1.CO.UK 217.160.81.150

  NAME womenwithepilepsy.co.uk

DISCLAIMER
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You may not access the .uk WHOIS or use any data from it except as permitted
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